Pulmonary Hypertension patients take alot of medications, some more than others, to help manage their disease. Its to help prevent the disease from worsening and to treat the side effects caused from the drugs that arise.
Taking ownership is probably the most important regimen apart from all the others that come with PH. Its so important to know as much as you possibly can about your disease. Its scary, I know, but the more you know about it, the easier it becomes to deal with.
Take charge of your health by following these simple steps:
Learn how your medications work:
Educate yourself about all your medications and what each is doing for your PH.
Organize your health information
Keep your medical information together at all times.
I started a medical journal from when I was first diagnosed. I write every detail related to my condition, from doctor appointments to decrease in medication, even days where I have felt something other than the norm. It has helped me communicate better with my doctors and in turn help them understand better on how I am feeling and to where my condition stands to it worsening or improving.
Purchase a Medic Alert Bracelet
These bracelets are here or a reason- to save lives. A medical bracelet is an indicator to the practitioner to search deeper for the other information they need to treat you adequately. Minutes make a difference.Go to ICE ID for further information
Be Confident
A Pulmonary Hypertension diagnosis is a curve-ball regardless of age, medical history of gender. Take a deep breath, ask for help when you need it and, above all, believe in yourself. No one knows your body better than you do. Listen to it.
Each of the drug classes used to treat Pulmonary hypertension have several side effects and drug interactions. Medical professionals share some of the most common problems encountered by PH patients. Talk to your PH doctor before starting any new medications.
Endothelin Receptor Antagonists
This type of medication has been associated with birth defects and liver damage. Monthly Liver function (LFT) tests have to be taken to prevent irreversible liver damage. Patients on Tracleer must have monthly LFT tests.
PDE- 5 Inhibitors
Should not be taken in combinations with nitrates , nitric oxide donors or alpha blockers. Taking these in combination can cause a significant drop in blood pressure, which could result in loss of consciousness or even death.
Warfarin
is designed to minimize blood clot formation in the pulmonary blood vessels, a benefit that can be dangerously enhanced by addition of a long list of medications and supplements, including some antibiotics; over the counter medications like Tylenol, Advil and Aleve; Vitamins and herbal supplements and green leafy vegetables. If you notice any unusual bruising or sign of bleeding- Call your Doctor.
Remember that you have to look after you- no one else. Its important to keep your medical records up to date and know when something is wrong- When in doubt call your Doc.
If you would like more information on a specific topic go to PH Association or if you need someone to talk to drop a comment below with your email address and I’ll get in touch. Theres comfort in knowing that your not alone out there.
#PHaware #PHenomenalHope